Clerk of the House of Representatives
Legislative Resource Center
135 Cannon Building
Washington, DC 20515
http://lobbyingdisclosure.house.gov 		Secretary of the Senate
Office of Public Records
232 Hart Building
Washington, DC 20510
http://www.senate.gov/lobby
LOBBYING REPORT

Lobbying Disclosure Act of 1995 (Section 5) - All Filers Are Required to Complete This Page

1. Registrant Name Organization/Lobbying Firm Self Employed Individual
Alliance for Aging Research

2. Address

Address1
1700 K Street, NW
 Address2
​Suite 740
City
Washington
 State
DC
 Zip Code
20006
 Country
USA

3. Principal place of business (if different than line 2)

City
​
State
​
Zip Code
​
Country
​
4a. Contact Name b. Telephone Number c. E-mail
​Mr.
​Ryne Carney
​2026881242
​rcarney@agingresearch.org
5. Senate ID#
​401010854-12
7. Client Name Self Check if client is a state or local government or instrumentality
​Alliance for Aging Research
6. House ID#
​421710000
TYPE OF REPORT 8. Year
​2020
 Q1 (1/1 - 3/31) Q2 (4/1 - 6/30) Q3 (7/1 - 9/30) Q4 (10/1 - 12/31)

9. Check if this filing amends a previously filed version of this report

10. Check if this is a Termination Report Termination Date
​
11. No Lobbying Issue Activity
INCOME OR EXPENSES - YOU MUST complete either Line 12 or Line 13
12. Lobbying 13. Organizations
INCOME relating to lobbying activities for this reporting period was: EXPENSE relating to lobbying activities for this reporting period were:
Less than $5,000
Less than $5,000
$5,000 or more $
​
$5,000 or more $
​
Provide a good faith estimate, rounded to the nearest $10,000, of all lobbying related income for the client (including all payments to the registrant by any other entity for lobbying activities on behalf of the client). 14. REPORTING Check box to indicate expense accounting method. See instructions for description of options.
Method A. Reporting amounts using LDA definitions only

Method B. Reporting amounts under section 6033(b)(8) of the Internal Revenue Code

Method C. Reporting amounts under section 162(e) of the Internal Revenue Code

Signature
Digitally Signed By: Ryne Carney
 Date
10/20/2020 4:06:20 PM

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code HCR

16. Specific lobbying issues

Meeting with Senate Finance Committee staff to discuss recommendations for xx
Signed letter asking requesting that all health education materials related to COVID-19 be accessible in at least 19 written languages and American Sign Language, support for interpretation services at COVID-19 testing sites, and to make comprehensive data available through the collection of regular reporting of language and disability characteristic of COVID-19 cases
The Alliance for Aging Research publicly supported S.Res.655 - A resolution declaring racism a public health crisis.
Signed a letter to House Telehealth Caucus in support of Protecting Access to Post-COVID-19 Telehealth Act of 2020 (HR 7663).
Signed a letter requesting $10 million for the Administration on Community Living and $4 million for the Centers for Disease Control and Prevention to increase support for falls prevention.
Had a meeting with Senate Finance staff to discuss the Committee's priorities to improve the treatment and care coordination for Alzheimer's disease patients after its hearing entitled "Alzheimers Awareness: Barriers to Diagnosis, Treatment, and Care Coordination"
Signed letter requesting Congress address the need to expand access to COVID-19 and influenza testing and immunization by designating pharmacists as providers under Medicare Part B.



17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern Rep. Ed Perlmutter
Michael
Ward
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MED

16. Specific lobbying issues

Call with the FDA to discuss public communications regarding COVID-19 vaccines
The Alliance for Aging Research submitted a comment letter to the FDA regarding our priorities for the Reauthorization of the Drug User Fee Act (PDUFA).
Signed an Ad Hoc Group for Medical Research letter requesting that a COVID-19 relief package include $15.5 billion for the National Institutes of Health (NIH)
Signed a letter to the Department of Health and Human Services expressing concern for the NIH Human Fetal Tissue Ethics Advisory Board. The letter asked HHS to reject the Ethics Advisory Boards recommendations through 42 U.S. Code 289a-1(b).

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE, Food & Drug Administration (FDA), Health & Human Services - Dept of (HHS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern. Rep. Ed Perlmutter
Michael
Ward
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MMM

16. Specific lobbying issues

Had meetings with HHS and CMS to discuss the proposed national coverage decision (NCD) memo for mitral valve Transcatheter Edge-to-Edge Repair (TEER)
Signed a letter to the Center for Clinical Standards and Quality proposing principles around the coverage of beta amyloid PET scans.
Submitted a sign on letter to Congressional leadership in support of an annual out-of-pocket cap in Medicare Part D, a mechanism to smooth patients OOP costs over a plan year, and a commitment that Part D reforms not include international reference pricing in coverage or reimbursement decision-making.
Signed a letter on the Establishing Minimum Standards in Medicaid State Drug Utilization Review (DUR) and Supporting Value-Based Purchasing (VBP) for Drugs Covered in Medicaid, Revising Medicaid Drug Rebate and Third-Party Liability (TPL) Requirements (CMS 2482-P). The letter expressed concern over a provision that would increase barriers to access of care that would require drug manufactures to include the value of cost-sharing assistance when calculating best price.
Submitted a letter to the Department of Health and Human Services and the Centers for Medicare and Medicaid Services on the proposed national coverage decision (NCD) memo for mitral valve Transcatheter Edge-to-Edge Repair (TEER)
Had meetings with the Centers for Medicare and Medicaid Services to discuss the appropriate use of psychoactive medication in long-term care facilities.

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern Rep. Ed Perlmutter
Michael
Ward
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code BUD

16. Specific lobbying issues

Signed a Friends of AHRQ letter in support of the AHRQ Funding Bill, H.R. 8067

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern, Rep. Ed Perlmutter

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code POS

16. Specific lobbying issues

Signed a Leadership Council for Aging Organizations letter requesting Congress to provide additional resources to support the U.S. Postal Service before November 3, 2020

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
​
Michael
Ward
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

Information Update Page - Complete ONLY where registration information has changed.

20. Client new address

Address
​
City
​
State
​
Zip Code
​
Country
​

21. Client new principal place of business (if different than line 20)

City
​
State
​
Zip Code
​
Country
​

22. New General description of client’s business or activities

​

LOBBYIST UPDATE

23. Name of each previously reported individual who is no longer expected to act as a lobbyist for the client

First Name
Last Name
Suffix
First Name
Last Name
Suffix
1
​
​
​
3
​
​
​
2
​
​
​
4
​
​
​

ISSUE UPDATE

24. General lobbying issue that no longer pertains

​
​
​
​
​
​
​
​
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AFFILIATED ORGANIZATIONS

25. Add the following affiliated organization(s)

Internet Address:

Name Address Principal Place of Business
(city and state or country)
Street Address
City State/Province Zip Country
City
State Country

26. Name of each previously reported organization that is no longer affiliated with the registrant or client

1 2 3

FOREIGN ENTITIES

27. Add the following foreign entities:

Name Address Principal place of business
(city and state or country) 		Amount of contribution for lobbying activities Ownership percentage in client
Street Address
City State/Province Country
City
State Country
%

28. Name of each previously reported foreign entity that no longer owns, or controls, or is affiliated with the registrant, client or affiliated organization

1 3 5
2 4 6

CONVICTIONS DISCLOSURE

29. Have any of the lobbyists listed on this report been convicted in a Federal or State Court of an offense involving bribery, extortion, embezzlement, an illegal kickback, tax evasion, fraud, a conflict of interest, making a false statement, perjury, or money laundering?

Lobbyist Name Description of Offense(s)