Clerk of the House of Representatives
Legislative Resource Center
135 Cannon Building
Washington, DC 20515
http://lobbyingdisclosure.house.gov 		Secretary of the Senate
Office of Public Records
232 Hart Building
Washington, DC 20510
http://www.senate.gov/lobby
LOBBYING REPORT

Lobbying Disclosure Act of 1995 (Section 5) - All Filers Are Required to Complete This Page

1. Registrant Name Organization/Lobbying Firm Self Employed Individual
Cystic Fibrosis Foundation

2. Address

Address1
4550 Montgomery Avenue
 Address2
​Suite 1100N
City
Bethesda
 State
MD
 Zip Code
20814
 Country
USA

3. Principal place of business (if different than line 2)

City
​
State
​
Zip Code
​
Country
​
4a. Contact Name b. Telephone Number c. E-mail
​Mr.
​JOEL AURORA
​4153896800
​jaurora@nmgovlaw.com
5. Senate ID#
​60195-12
7. Client Name Self Check if client is a state or local government or instrumentality
​Cystic Fibrosis Foundation
6. House ID#
​353460000
TYPE OF REPORT 8. Year
​2026
 Q1 (1/1 - 3/31) Q2 (4/1 - 6/30) Q3 (7/1 - 9/30) Q4 (10/1 - 12/31)

9. Check if this filing amends a previously filed version of this report

10. Check if this is a Termination Report Termination Date
​
11. No Lobbying Issue Activity
INCOME OR EXPENSES - YOU MUST complete either Line 12 or Line 13
12. Lobbying 13. Organizations
INCOME relating to lobbying activities for this reporting period was: EXPENSE relating to lobbying activities for this reporting period were:
Less than $5,000
Less than $5,000
$5,000 or more $
​
$5,000 or more $
​250,000.00
Provide a good faith estimate, rounded to the nearest $10,000, of all lobbying related income for the client (including all payments to the registrant by any other entity for lobbying activities on behalf of the client). 14. REPORTING Check box to indicate expense accounting method. See instructions for description of options.
Method A. Reporting amounts using LDA definitions only

Method B. Reporting amounts under section 6033(b)(8) of the Internal Revenue Code

Method C. Reporting amounts under section 162(e) of the Internal Revenue Code

Signature
Digitally Signed By: Joel Aurora, Attorney & Agent
 Date
4/20/2026 7:26:29 PM

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code HCR

16. Specific lobbying issues

H.R. 4317: PHARMACY BENEFIT MANAGER (PBM) REFORM ACT OF 2025; ALL PROVISIONS

H.R. 6423: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS

H.R 7352: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS

H.R. 7879: SAVING US FROM PANDEMIC ERA RESISTANCE BY BUILDING A UNIFIED GLOBAL STRATEGY (SUPER BUGS) ACT OF 2026; ALL PROVISIONS

S. 864: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS

GENERAL DISCUSSIONS SURROUNDING ANTIBIOTICS REIMBURSEMENT AND INCENTIVIZING THE DEVELOPMENT OF NOVEL ANTIMICROBIALS

GENERAL DISCUSSIONS SURROUNDING THE ENHANCED ADVANCED PREMIUM TAX CREDIT EXPIRATION AND EXTENSION

GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM

GENERAL DISCUSSIONS SURROUNDING NON-COMPREHENSIVE INSURANCE PRODUCTS, EXPANSION OF HEALTH DEDUCTIBLE HEALTH PLANS PAIRED WITH HEALTH SPENDING ACCOUNTS

GENERAL DISCUSSIONS SURROUNDING FY2026 APPROPRIATIONS; PROVISIONS RELATED TO FUNDING FOR DOMESTIC AND GLOBAL AMR PROGRAMS, PUBLIC HEALTH WORKFORCE REPAYMENT PROGRAM, BIO-PREPAREDNESS WORKFORCE PILOT PROGRAM, AND PROTECTION OF MEDICARE, MEDICAID, AND SOCIAL SECURITY PROGRAMS. HHS AND RELATED AGENCIES STAFFING AND FUNDING, FDA AND RELATED AGENCIES, CDC AND RELATED AGENCIES, NIH AND RELATED AGENCIES, FUNDING FOR NUTRITION ASSISTANCE PROGRAMS, AND MEDICAL EXPENSE DEDUCTION. POLICY RIDERS INCLUDED IN A DRAFT LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION RELATED AGENCIES FUNDING BILL

GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NIH RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE SENATES LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH

PPC 2027 NOTICE OF BENEFIT AND PAYMENT PARAMETERS; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN COMMENTS ON 2027 HHS NOTICE OF BENEFIT AND PAYMENT PARAMETERS

PPC LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES ON H.R. 1 IMPLEMENTATION; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN LETTER TO CMS EXPRESSING CONCERNS AND ASKING FOR FURTHER CLARIFICATION ON PIECES OF H.R. 1 IMPLEMENTATION

CYSTIC FIBROSIS FOUNDATION SENDS LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES AND CENTER FOR MEDICARE AND MEDICAID INNOVATION; CYSTIC FIBROSIS FOUNDATION SUBMITS COMMENTS TO CMS/CMMI IN RESPONSE TO A PROPOSED MODEL TO ADDRESS DRUG PRICES IN MEDICARE

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE, Health & Human Services - Dept of (HHS), Centers For Medicare and Medicaid Services (CMS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
MARY
DWIGHT
​
​
DAVID
ELIN
​
​
CASSIDY
PELKEY
​
​
SCOTT
SHERWOOD
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code INS

16. Specific lobbying issues

H.R. 4317: PHARMACY BENEFIT MANAGER (PBM) REFORM ACT OF 2025; ALL PROVISIONS

H.R. 6423: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS

S. 864: HELP ENSURE LOWER PATIENT (HELP) COPAYS ACT; ALL PROVISIONS

GENERAL DISCUSSIONS SURROUNDING THE ENHANCED ADVANCED PREMIUM TAX CREDIT EXPIRATION AND EXTENSION

GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM

GENERAL DISCUSSIONS SURROUNDING NON-COMPREHENSIVE INSURANCE PRODUCTS, EXPANSION OF HEALTH DEDUCTIBLE HEALTH PLANS PAIRED WITH HEALTH SPENDING ACCOUNTS

GENERAL DISCUSSIONS SURROUNDING FY2026 APPROPRIATIONS; PROVISIONS RELATED TO FUNDING FOR DOMESTIC AND GLOBAL AMR PROGRAMS, PUBLIC HEALTH WORKFORCE REPAYMENT PROGRAM, BIO-PREPAREDNESS WORKFORCE PILOT PROGRAM, AND PROTECTION OF MEDICARE, MEDICAID, AND SOCIAL SECURITY PROGRAMS. HHS AND RELATED AGENCIES STAFFING AND FUNDING, FDA AND RELATED AGENCIES, CDC AND RELATED AGENCIES, NIH AND RELATED AGENCIES, FUNDING FOR NUTRITION ASSISTANCE PROGRAMS, AND MEDICAL EXPENSE DEDUCTION. POLICY RIDERS INCLUDED IN A DRAFT LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION RELATED AGENCIES FUNDING BILL

GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NIH RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE SENATES LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH

PPC 2027 NOTICE OF BENEFIT AND PAYMENT PARAMETERS; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN COMMENTS ON 2027 HHS NOTICE OF BENEFIT AND PAYMENT PARAMETERS

PPC LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES ON H.R. 1 IMPLEMENTATION; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN LETTER TO CMS EXPRESSING CONCERNS AND ASKING FOR FURTHER CLARIFICATION ON PIECES OF H.R. 1 IMPLEMENTATION

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE, Health & Human Services - Dept of (HHS), Centers For Medicare and Medicaid Services (CMS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
DAVID
ELIN
​
​
MARY
DWIGHT
​
​
CASSIDY
PELKEY
​
​
SCOTT
SHERWOOD
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code BUD

16. Specific lobbying issues

GENERAL DISCUSSIONS SURROUNDING FY2026 APPROPRIATIONS; PROVISIONS RELATED TO FUNDING FOR DOMESTIC AND GLOBAL AMR PROGRAMS, PUBLIC HEALTH WORKFORCE REPAYMENT PROGRAM, BIO-PREPAREDNESS WORKFORCE PILOT PROGRAM, AND PROTECTION OF MEDICARE, MEDICAID, AND SOCIAL SECURITY PROGRAMS. HHS AND RELATED AGENCIES STAFFING AND FUNDING, FDA AND RELATED AGENCIES, CDC AND RELATED AGENCIES, NIH AND RELATED AGENCIES, FUNDING FOR NUTRITION ASSISTANCE PROGRAMS, AND MEDICAL EXPENSE DEDUCTION. POLICY RIDERS INCLUDED IN A DRAFT LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION RELATED AGENCIES FUNDING BILL

GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NIH RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE SENATES LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH

GENERAL DISCUSSIONS SURROUNDING FY2027 APPROPRIATIONS; PROVISIONS RELATED TO NATIONAL INSTITUTE OF HEALTH AND FOOD AND DRUG ADMINISTRATION

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
DAVID
ELIN
​
​
MARY
DWIGHT
​
​
SCOTT
SHERWOOD
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MED

16. Specific lobbying issues

H.R 7352: PIONEERING ANTIMICROBIAL SUBSCRIPTIONS TO END UPSURGING RESISTANCE (PASTEUR) ACT OF 2026; ALL PROVISIONS

H.R. 7879: SAVING US FROM PANDEMIC ERA RESISTANCE BY BUILDING A UNIFIED GLOBAL STRATEGY (SUPER BUGS) ACT OF 2026; ALL PROVISIONS

GENERAL DISCUSSIONS SURROUNDING ANTIBIOTICS REIMBURSEMENT AND INCENTIVIZING THE DEVELOPMENT OF NOVEL ANTIMICROBIALS

GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM

GENERAL DISCUSSIONS SURROUNDING FY2026 APPROPRIATIONS; PROVISIONS RELATED TO FUNDING FOR DOMESTIC AND GLOBAL AMR PROGRAMS, PUBLIC HEALTH WORKFORCE REPAYMENT PROGRAM, BIO-PREPAREDNESS WORKFORCE PILOT PROGRAM, AND PROTECTION OF MEDICARE, MEDICAID, AND SOCIAL SECURITY PROGRAMS. HHS AND RELATED AGENCIES STAFFING AND FUNDING, FDA AND RELATED AGENCIES, CDC AND RELATED AGENCIES, NIH AND RELATED AGENCIES, FUNDING FOR NUTRITION ASSISTANCE PROGRAMS, AND MEDICAL EXPENSE DEDUCTION. POLICY RIDERS INCLUDED IN A DRAFT LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION RELATED AGENCIES FUNDING BILL

GENERAL DISCUSSIONS SURROUNDING RESTRICTIONS ON ADVANCE FUNDING FOR MULTI-YEAR NIH RESEARCH GRANTS; PROVISIONS RELATED TO PRESERVING THE SENATES LANGUAGE RESTRICTING ADVANCE FUNDING OF MULTI-YEAR RESEARCH GRANTS BY THE NIH

GENERAL DISCUSSIONS SURROUNDING FY2027 APPROPRIATIONS; PROVISIONS RELATED TO NATIONAL INSTITUTE OF HEALTH AND FOOD AND DRUG ADMINISTRATION

CYSTIC FIBROSIS FOUNDATION SENDS LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES AND CENTER FOR MEDICARE AND MEDICAID INNOVATION; CYSTIC FIBROSIS FOUNDATION SUBMITS COMMENTS TO CMS/CMMI IN RESPONSE TO A PROPOSED MODEL TO ADDRESS DRUG PRICES IN MEDICARE

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE, Centers For Medicare and Medicaid Services (CMS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
MARY
DWIGHT
​
​
DAVID
ELIN
​
​
SCOTT
SHERWOOD
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MMM

16. Specific lobbying issues

GENERAL DISCUSSIONS SURROUNDING MAINTAINING ACCESS TO MEDICAID AND PROPOSED CHANGES TO THE PROGRAM

GENERAL DISCUSSIONS SURROUNDING FY2026 APPROPRIATIONS; PROVISIONS RELATED TO FUNDING FOR DOMESTIC AND GLOBAL AMR PROGRAMS, PUBLIC HEALTH WORKFORCE REPAYMENT PROGRAM, BIO-PREPAREDNESS WORKFORCE PILOT PROGRAM, AND PROTECTION OF MEDICARE, MEDICAID, AND SOCIAL SECURITY PROGRAMS. HHS AND RELATED AGENCIES STAFFING AND FUNDING, FDA AND RELATED AGENCIES, CDC AND RELATED AGENCIES, NIH AND RELATED AGENCIES, FUNDING FOR NUTRITION ASSISTANCE PROGRAMS, AND MEDICAL EXPENSE DEDUCTION. POLICY RIDERS INCLUDED IN A DRAFT LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION RELATED AGENCIES FUNDING BILL

PPC 2027 NOTICE OF BENEFIT AND PAYMENT PARAMETERS; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN COMMENTS ON 2027 HHS NOTICE OF BENEFIT AND PAYMENT PARAMETERS

PPC LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES ON H.R. 1 IMPLEMENTATION; CYSTIC FIBROSIS FOUNDATION JOINS PATIENT AND HEALTH GROUPS IN LETTER TO CMS EXPRESSING CONCERNS AND ASKING FOR FURTHER CLARIFICATION ON PIECES OF H.R. 1 IMPLEMENTATION

CYSTIC FIBROSIS FOUNDATION SENDS LETTER TO CENTERS FOR MEDICARE & MEDICAID SERVICES AND CENTER FOR MEDICARE AND MEDICAID INNOVATION; CYSTIC FIBROSIS FOUNDATION SUBMITS COMMENTS TO CMS/CMMI IN RESPONSE TO A PROPOSED MODEL TO ADDRESS DRUG PRICES IN MEDICARE

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
DAVID
ELIN
​
​
MARY
DWIGHT
​
​
SCOTT
SHERWOOD
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

Information Update Page - Complete ONLY where registration information has changed.

20. Client new address

Address
​
City
​
State
​
Zip Code
​
Country
​

21. Client new principal place of business (if different than line 20)

City
​
State
​
Zip Code
​
Country
​

22. New General description of client’s business or activities

​

LOBBYIST UPDATE

23. Name of each previously reported individual who is no longer expected to act as a lobbyist for the client

First Name
Last Name
Suffix
First Name
Last Name
Suffix
1
​CASSIDY
​PELKEY
​
3
​
​
​
2
​
​
​
4
​
​
​

ISSUE UPDATE

24. General lobbying issue that no longer pertains

​
​
​
​
​
​
​
​
​

AFFILIATED ORGANIZATIONS

25. Add the following affiliated organization(s)

Internet Address:

Name Address Principal Place of Business
(city and state or country)
Street Address
City State/Province Zip Country
City
State Country

26. Name of each previously reported organization that is no longer affiliated with the registrant or client

1 2 3

FOREIGN ENTITIES

27. Add the following foreign entities:

Name Address Principal place of business
(city and state or country) 		Amount of contribution for lobbying activities Ownership percentage in client
Street Address
City State/Province Country
City
State Country
%

28. Name of each previously reported foreign entity that no longer owns, or controls, or is affiliated with the registrant, client or affiliated organization

1 3 5
2 4 6

CONVICTIONS DISCLOSURE

29. Have any of the lobbyists listed on this report been convicted in a Federal or State Court of an offense involving bribery, extortion, embezzlement, an illegal kickback, tax evasion, fraud, a conflict of interest, making a false statement, perjury, or money laundering?

Lobbyist Name Description of Offense(s)