Clerk of the House of Representatives
Legislative Resource Center
135 Cannon Building
Washington, DC 20515
http://lobbyingdisclosure.house.gov 		Secretary of the Senate
Office of Public Records
232 Hart Building
Washington, DC 20510
http://www.senate.gov/lobby
LOBBYING REPORT

Lobbying Disclosure Act of 1995 (Section 5) - All Filers Are Required to Complete This Page

1. Registrant Name Organization/Lobbying Firm Self Employed Individual
Alliance for Aging Research

2. Address

Address1
1700 K Street, NW
 Address2
​Suite 740
City
Washington
 State
DC
 Zip Code
20006
 Country
USA

3. Principal place of business (if different than line 2)

City
​
State
​
Zip Code
​
Country
​
4a. Contact Name b. Telephone Number c. E-mail
​Ms.
​Ellen Jenkins
​2022576396
​mjenkins@agingresearch.org
5. Senate ID#
​401010854-12
7. Client Name Self Check if client is a state or local government or instrumentality
​Alliance for Aging Research
6. House ID#
​421710000
TYPE OF REPORT 8. Year
​2019
 Q1 (1/1 - 3/31) Q2 (4/1 - 6/30) Q3 (7/1 - 9/30) Q4 (10/1 - 12/31)

9. Check if this filing amends a previously filed version of this report

10. Check if this is a Termination Report Termination Date
​
11. No Lobbying Issue Activity
INCOME OR EXPENSES - YOU MUST complete either Line 12 or Line 13
12. Lobbying 13. Organizations
INCOME relating to lobbying activities for this reporting period was: EXPENSE relating to lobbying activities for this reporting period were:
Less than $5,000
Less than $5,000
$5,000 or more $
​
$5,000 or more $
​
Provide a good faith estimate, rounded to the nearest $10,000, of all lobbying related income for the client (including all payments to the registrant by any other entity for lobbying activities on behalf of the client). 14. REPORTING Check box to indicate expense accounting method. See instructions for description of options.
Method A. Reporting amounts using LDA definitions only

Method B. Reporting amounts under section 6033(b)(8) of the Internal Revenue Code

Method C. Reporting amounts under section 162(e) of the Internal Revenue Code

Signature
Digitally Signed By: Ellen Jenkins
 Date
10/21/2019 2:33:53 PM

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code HCR

16. Specific lobbying issues

-Signed letter calling for advancements, new investment, and policies to stabilize the antimicrobial market, ensure a robust and diverse antibiotic pipeline, and reduce antimicrobial resistance. The letter supported universal hospital reporting of antibiotic use and resistance data to the CDC National Healthcare Safety Network (NHSN) and for HHS to provide funding for hospitals that may require initial support to establish stewardship programs and to begin reporting to NHSN. The letter also supported the U.S. Food and Drug Administration (FDA) five-year roadmap to enhance stewardship in veterinary settings and food-animal production.

17. House(s) of Congress and Federal agencies Check if None

Health & Human Services - Dept of (HHS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern Rep. Ed Perlmutter
Ellen
Jenkins
​
Special Assistant to the Speaker, Office of Speaker Newton L. Gingrich Assistant to the Senate Minority Whip, Office of Senate Minority Leader Alan K. Simpson

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MED

16. Specific lobbying issues

-Signed letter expressing concern regarding two National Institutes of Health (NIH) guidances titled Changes to NIH Requirements Regarding Proposed Human Fetal Tissue Research and Clarifying Competing Application Instructions and Notice of Publication of Frequently Asked Questions Regarding Proposed Human Fetal Tissue Research. Our organization was concerned about proposed restrictions regarding federal research requiring the use of fetal tissue.

-Signed letter opposing Section 207 of S. 1895 the Lower Health Care Costs Act.

--Signed letter supporting the appointment of Dr. Norman E. Sharpless as the Commissioner of the Food and Drug Administration

17. House(s) of Congress and Federal agencies Check if None

U.S. HOUSE OF REPRESENTATIVES, U.S. SENATE, White House Office, Health & Human Services - Dept of (HHS)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern. Rep. Ed Perlmutter
Ellen
Jenkins
​
Special Assistant to the Speaker, Office of Speaker Newton L. Gingrich Assistant to the Senate Minority Whip, Office of Senate Minority Leader Alan K. Simpson

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code MMM

16. Specific lobbying issues

-Signed letter requesting the delay of Protecting Access to Medicare Data Act (PAMA) data reporting period and supporting H.R. 3584, The Laboratory Access for Beneficiaries (LAB) Act.
-Submitted meeting summary document to the Hill that found widespread support for an out-of-pocket cap for Medicare Part D, allowing for installment paying for Part D prescription drugs, and consideration of realigning incentives in the Part D program that may currently prefer higher-cost products.

-Signed a Medicare Access for Patients Rx (MAPRx) letter that supported the out-of-pocket cap in Medicare Part D in the Prescription Drug Pricing Act of 2019.

-Signed letter supporting Improving Seniors Timely Access to Care Act of 2019 (H.R. 3107)

-Submitted letter thanking Sen. Menendez and Sen. Cassidy for working on introducing legislative language to allow for Medicare Part D beneficiaries to pay for their medications in installments.

-Signed letter supporting an extension of a Centers for Medicare & Medicaid Services (CMS) program to provide equitable relief for select individuals enrolled in a Marketplace plan who delayed Medicare enrollment during their Initial Enrollment Period.

-Signed letter to waive out-of-pocket costs for seniors on Medicare who have precancerous polyps removed during a colonoscopy.

-Submitted letter regarding a CMS proposed rule Medicare and Medicaid Programs; Requirements for Long-Term Care Facilities: Regulatory Provisions To Promote Efficiency, and Transparency calling for changes to prescribing practices and the rating system for antipsychotics in long-term care facilities.

-Ryne and Missy had meetings with Congressional staff to discuss allow the Medicare Part D program to allow for installment payments for prescription medication

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), White House Office, U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern Rep. Ed Perlmutter
Ellen
Jenkins
​
Special Assistant to the Speaker, Office of Speaker Newton L. Gingrich Assistant to the Senate Minority Whip, Office of Senate Minority Leader Alan K. Simpson

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code BUD

16. Specific lobbying issues

-Ryne and Ellen met with Congressional staff to advocate for the reauthorization of the Patient-Centered Outcomes Research Institute (PCORI)

-Ellen met with Senate staff to discuss reauthorization of the Elder Justice Act

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Ryne
Carney
​
Intern, Rep. Ed Perlmutter
Missy
Jenkins
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

Information Update Page - Complete ONLY where registration information has changed.

20. Client new address

Address
​
City
​
State
​
Zip Code
​
Country
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21. Client new principal place of business (if different than line 20)

City
​
State
​
Zip Code
​
Country
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22. New General description of client’s business or activities

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LOBBYIST UPDATE

23. Name of each previously reported individual who is no longer expected to act as a lobbyist for the client

First Name
Last Name
Suffix
First Name
Last Name
Suffix
1
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3
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2
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4
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ISSUE UPDATE

24. General lobbying issue that no longer pertains

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AFFILIATED ORGANIZATIONS

25. Add the following affiliated organization(s)

Internet Address:

Name Address Principal Place of Business
(city and state or country)
Street Address
City State/Province Zip Country
City
State Country

26. Name of each previously reported organization that is no longer affiliated with the registrant or client

1 2 3

FOREIGN ENTITIES

27. Add the following foreign entities:

Name Address Principal place of business
(city and state or country) 		Amount of contribution for lobbying activities Ownership percentage in client
Street Address
City State/Province Country
City
State Country
%

28. Name of each previously reported foreign entity that no longer owns, or controls, or is affiliated with the registrant, client or affiliated organization

1 3 5
2 4 6

CONVICTIONS DISCLOSURE

29. Have any of the lobbyists listed on this report been convicted in a Federal or State Court of an offense involving bribery, extortion, embezzlement, an illegal kickback, tax evasion, fraud, a conflict of interest, making a false statement, perjury, or money laundering?

Lobbyist Name Description of Offense(s)