Clerk of the House of Representatives
Legislative Resource Center
135 Cannon Building
Washington, DC 20515
http://lobbyingdisclosure.house.gov 		Secretary of the Senate
Office of Public Records
232 Hart Building
Washington, DC 20510
http://www.senate.gov/lobby
LOBBYING REPORT

Lobbying Disclosure Act of 1995 (Section 5) - All Filers Are Required to Complete This Page

1. Registrant Name Organization/Lobbying Firm Self Employed Individual
Epilepsy Foundation

2. Address

Address1
8301 PROFESSIONAL PLACE WEST
 Address2
​Suite 230
City
LANDOVER
 State
MD
 Zip Code
20785-2353
 Country
USA

3. Principal place of business (if different than line 2)

City
​
State
​
Zip Code
​
Country
​
4a. Contact Name b. Telephone Number c. E-mail
​Ms.
​Abbey Roudebush
​3019183784
​aroudebush@efa.org
5. Senate ID#
​13723-12
7. Client Name Self Check if client is a state or local government or instrumentality
​Epilepsy Foundation
6. House ID#
​333440000
TYPE OF REPORT 8. Year
​2019
 Q1 (1/1 - 3/31) Q2 (4/1 - 6/30) Q3 (7/1 - 9/30) Q4 (10/1 - 12/31)

9. Check if this filing amends a previously filed version of this report

10. Check if this is a Termination Report Termination Date
​
11. No Lobbying Issue Activity
INCOME OR EXPENSES - YOU MUST complete either Line 12 or Line 13
12. Lobbying 13. Organizations
INCOME relating to lobbying activities for this reporting period was: EXPENSE relating to lobbying activities for this reporting period were:
Less than $5,000
Less than $5,000
$5,000 or more $
​
$5,000 or more $
​60,000.00
Provide a good faith estimate, rounded to the nearest $10,000, of all lobbying related income for the client (including all payments to the registrant by any other entity for lobbying activities on behalf of the client). 14. REPORTING Check box to indicate expense accounting method. See instructions for description of options.
Method A. Reporting amounts using LDA definitions only

Method B. Reporting amounts under section 6033(b)(8) of the Internal Revenue Code

Method C. Reporting amounts under section 162(e) of the Internal Revenue Code

Signature
Digitally Signed By: Abbey Roudebush
 Date
10/18/2019 2:32:45 PM

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code BUD

16. Specific lobbying issues

-H.R. 3877, Bipartisan Budget Act, support raising budget caps
-H.R. 4378, Continuing Resolution Act, support
-H.R. 2740, FY 2020 Labor, Health and Human Services and Education Appropriations Act, support $11.5 million for the Centers for Disease Controls National Center for Chronic Disease Prevention and Health Promotion; $41.6 billion for the National Institutes of Health; $8.56 billion for the Health Resources & Services Administrations (HRSA) discretionary budget authority; $46 million for the Agency for Healthcare Research and Quality (AHRQ); support $20 million for the Lifespan Respite Care Program; and a $1.7 billion increase over 2019 levels for the Individuals with Disabilities Education Act.
-H.R. 2968, FY Defense Appropriations Act, support continued funding for the Congressionally Directed Medical Research Program (CDMRP).

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Laura
Weidner
​
​
Abbey
Roudebush
​
​
Rachel
Patterson
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code HCR

16. Specific lobbying issues

-H.R. 2279/S. 2546, Safe Step Act, support passage
-H.R. 712, VA Medicinal Cannabis Research Act, support addition of epilepsy
-H.R. 2093/S. 1028, STATES Act, support passage
-H.R. 127, Compassionate Access, Research Expansion and Respect States (CARERS) Act, support passage
-H.R. 4322/S. 2400, Expanding Cannabis Research and Information Act, support passage
-FDA-2019-N-1428, Scientific Data and Information about Products Containing Cannabis or Cannabis-Derived Compounds, support preservation of meaningful access to cannabis and cannabis-derived products, including CBD tinctures with therapeutic levels of the cannabinoid, and creation of a regulatory framework that ensures that there is consistency in available products, manufacturing, safety, testing, and labeling standards, and increases the availability of important information such as potential side effects and drug interactions so that consumers and practitioners may be better informed
-H.R. 2328/H.R. 3439, support reauthorization of the Patient-Centered Outcomes Research Institute (PCORI) for a minimum of 7 years
-HHS Docket No. HHS-OCR-2019-0007, RIN 0945-AA11, oppose weakening of anti-discrimination provisions of Section 1557 of the Affordable Care Act
-H.R. 3, Lower Drug Costs Now Act, support specific provisions that are relevant to the epilepsy community such as an out-of-pocket cap in Medicare Part D and addition of language to ban the use of QALYs
-FY 2020 Revisions to Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies (CMS-1715-P) and CY 2020 Medicare Hospital Outpatient Prospective Payment System Proposed Rule (CMS-1717-P), expressed concern with reductions in the values for the new long-term EEG (electroencephalograph) and video EEG (VEEG) professional and technical service codes and urge appropriate values be assigned
-RIN:0938-AT41, oppose proposed rescission of the existing regulations on Medicaid equal access

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), Food & Drug Administration (FDA)

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Abbey
Roudebush
​
​
Laura
Weidner
​
​
Rachel
Patterson
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

LOBBYING ACTIVITY. Select as many codes as necessary to reflect the general issue areas in which the registrant engaged in lobbying on behalf of the client during the reporting period. Using a separate page for each code, provide information as requested. Add additional page(s) as needed.

15. General issue area code CIV

16. Specific lobbying issues

-H.R. 1549, Air Carrier Access Amendments Act, support passage to make air travel more accessible for people with disabilities

17. House(s) of Congress and Federal agencies Check if None

U.S. SENATE, U.S. HOUSE OF REPRESENTATIVES

18. Name of each individual who acted as a lobbyist in this issue area

First Name Last Name Suffix Covered Official Position (if applicable) New
Rachel
Patterson
​
​

19. Interest of each foreign entity in the specific issues listed on line 16 above Check if None

​

Information Update Page - Complete ONLY where registration information has changed.

20. Client new address

Address
​
City
​
State
​
Zip Code
​
Country
​

21. Client new principal place of business (if different than line 20)

City
​
State
​
Zip Code
​
Country
​

22. New General description of client’s business or activities

​

LOBBYIST UPDATE

23. Name of each previously reported individual who is no longer expected to act as a lobbyist for the client

First Name
Last Name
Suffix
First Name
Last Name
Suffix
1
​
​
​
3
​
​
​
2
​
​
​
4
​
​
​

ISSUE UPDATE

24. General lobbying issue that no longer pertains

​
​
​
​
​
​
​
​
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AFFILIATED ORGANIZATIONS

25. Add the following affiliated organization(s)

Internet Address:

Name Address Principal Place of Business
(city and state or country)
Street Address
City State/Province Zip Country
City
State Country

26. Name of each previously reported organization that is no longer affiliated with the registrant or client

1 2 3

FOREIGN ENTITIES

27. Add the following foreign entities:

Name Address Principal place of business
(city and state or country) 		Amount of contribution for lobbying activities Ownership percentage in client
Street Address
City State/Province Country
City
State Country
%

28. Name of each previously reported foreign entity that no longer owns, or controls, or is affiliated with the registrant, client or affiliated organization

1 3 5
2 4 6

CONVICTIONS DISCLOSURE

29. Have any of the lobbyists listed on this report been convicted in a Federal or State Court of an offense involving bribery, extortion, embezzlement, an illegal kickback, tax evasion, fraud, a conflict of interest, making a false statement, perjury, or money laundering?

Lobbyist Name Description of Offense(s)