{"url":"https://lda.senate.gov/api/v1/filings/b8bfe80d-9706-4d44-bbcc-9a7f2ff54fbb/","filing_uuid":"b8bfe80d-9706-4d44-bbcc-9a7f2ff54fbb","filing_type":"Q4","filing_type_display":"4th Quarter - Report","filing_year":2023,"filing_period":"fourth_quarter","filing_period_display":"4th Quarter (Oct 1 - Dec 31)","filing_document_url":"https://lda.senate.gov/filings/public/filing/b8bfe80d-9706-4d44-bbcc-9a7f2ff54fbb/print/","filing_document_content_type":"text/html","income":null,"expenses":"60000.00","expenses_method":"B","expenses_method_display":"B","posted_by_name":"Laura Weidner","dt_posted":"2024-01-23T13:24:43-05:00","termination_date":null,"registrant_country":"United States of America","registrant_ppb_country":null,"registrant_address_1":"3540 Crain Highway","registrant_address_2":"Ste. 675","registrant_different_address":true,"registrant_city":"Bowie","registrant_state":"MD","registrant_zip":"20716","registrant":{"id":13723,"url":"https://lda.senate.gov/api/v1/registrants/13723/","house_registrant_id":33344,"name":"EPILEPSY FOUNDATION","description":null,"address_1":"3540 Crain Highway","address_2":"Ste. 675","address_3":null,"address_4":null,"city":"Bowie","state":"MD","state_display":"Maryland","zip":"20716","country":"US","country_display":"United States of America","ppb_country":"US","ppb_country_display":"United States of America","contact_name":"LAURA WEIDNER","contact_telephone":"+1 301-918-3766","dt_updated":"2026-07-20T13:55:01.108310-04:00"},"client":{"id":119125,"url":"https://lda.senate.gov/api/v1/clients/119125/","client_id":12,"name":"EPILEPSY FOUNDATION","general_description":null,"client_government_entity":false,"client_self_select":true,"state":"MD","state_display":"Maryland","country":"US","country_display":"United States of America","ppb_state":"MD","ppb_state_display":"Maryland","ppb_country":"US","ppb_country_display":"United States of America","effective_date":"2007-07-18"},"lobbying_activities":[{"general_issue_code":"BUD","general_issue_code_display":"Budget/Appropriations","description":"-H.R. 5860, Continuing Appropriations Act, 2024 and Other Extensions Act, support passage. -H.R. 6363, Further Continuing Appropriations and Other Extensions Act, support passage. -Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2024, support funding for epilepsy programs and research including at least $11.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51 billion for the NIH, $10 million to start considering an epilepsy-related research and clinical consortium at the NIH, $5 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2024, support at least $19 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2024, support $3.963 billion for the Food & Drug Administrations BA. -Defense Appropriations Act, 2024, support robust funding for epilepsy-related research through the Congressionally Directed Medical Research Programs.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":69712,"prefix":null,"prefix_display":null,"first_name":"LAURA","nickname":null,"middle_name":null,"last_name":"WEIDNER","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":true}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"HCR","general_issue_code_display":"Health Issues","description":"-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of the Six Protected Classes policy in Medicare Part D. -Support patient-centric implementation of Medicare Part D out-of-pocket cap and smoothing. -Educate about Medicaid and CHIP unwinding to try and reduce coverage losses. -H.R. 485, Protecting Health Care for All Patients Act, support passage. -Ensure any regulation of CBD protects safe and legal access. -Ensure continued access to epilepsy medications that are controlled substances considering potential changes to prescribing via telehealth. -Support implementation and oversight of the mental health parity law to ensure parity of insurance coverage between medical and mental health -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support adding epilepsy to the Healthy People 2030 objectives","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":69712,"prefix":null,"prefix_display":null,"first_name":"LAURA","nickname":null,"middle_name":null,"last_name":"WEIDNER","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":true}],"government_entities":[{"id":136,"name":"Centers For Medicare and Medicaid Services (CMS)"},{"id":155,"name":"Drug Enforcement Administration (DEA)"},{"id":135,"name":"Food & Drug Administration (FDA)"},{"id":34,"name":"Health & Human Services, Dept of (HHS)"},{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":38,"name":"Labor, Dept of (DOL)"},{"id":1,"name":"SENATE"},{"id":41,"name":"Treasury, Dept of"}]},{"general_issue_code":"CIV","general_issue_code_display":"Civil Rights/Civil Liberties","description":"-S. 545/H.R. 1267, Air Carrier Access Amendments Act, support passage. -Support updated 504 regulations to ensure that people with disabilities have equal access and rights in health care -H.R. 6551, Heroes Earned Affordable Lifts (HEAL) Act, support passage","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":true}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"},{"id":40,"name":"Transportation, Dept of (DOT)"}]}],"conviction_disclosures":[],"foreign_entities":[],"affiliated_organizations":[]}