{"url":"https://lda.senate.gov/api/v1/filings/148eafc8-3bb6-4cd5-a3f7-2c6b191c88be/","filing_uuid":"148eafc8-3bb6-4cd5-a3f7-2c6b191c88be","filing_type":"Q3","filing_type_display":"3rd Quarter - Report","filing_year":2024,"filing_period":"third_quarter","filing_period_display":"3rd Quarter (July 1 - Sep 30)","filing_document_url":"https://lda.senate.gov/filings/public/filing/148eafc8-3bb6-4cd5-a3f7-2c6b191c88be/print/","filing_document_content_type":"text/html","income":null,"expenses":"60000.00","expenses_method":"B","expenses_method_display":"B","posted_by_name":"Laura Weidner","dt_posted":"2024-10-21T12:25:42-04:00","termination_date":null,"registrant_country":"United States of America","registrant_ppb_country":null,"registrant_address_1":"3540 Crain Highway","registrant_address_2":"Ste. 675","registrant_different_address":true,"registrant_city":"Bowie","registrant_state":"MD","registrant_zip":"20716","registrant":{"id":13723,"url":"https://lda.senate.gov/api/v1/registrants/13723/","house_registrant_id":33344,"name":"EPILEPSY FOUNDATION","description":null,"address_1":"3540 Crain Highway","address_2":"Ste. 675","address_3":null,"address_4":null,"city":"Bowie","state":"MD","state_display":"Maryland","zip":"20716","country":"US","country_display":"United States of America","ppb_country":"US","ppb_country_display":"United States of America","contact_name":"LAURA WEIDNER","contact_telephone":"+1 301-918-3766","dt_updated":"2026-07-20T13:55:01.108310-04:00"},"client":{"id":119125,"url":"https://lda.senate.gov/api/v1/clients/119125/","client_id":12,"name":"EPILEPSY FOUNDATION","general_description":null,"client_government_entity":false,"client_self_select":true,"state":"MD","state_display":"Maryland","country":"US","country_display":"United States of America","ppb_state":"MD","ppb_state_display":"Maryland","ppb_country":"US","ppb_country_display":"United States of America","effective_date":"2007-07-18"},"lobbying_activities":[{"general_issue_code":"CIV","general_issue_code_display":"Civil Rights/Civil Liberties","description":"-S. 545/H.R. 1267, Air Carrier Access Amendments Act, support passage. -Response to DOT RFI on accessibility of transportation facilities -Response to DOT RFI on Opportunities and Challenges of Artificial Intelligence in Transportation -H.R. 6551, Heroes Earned Affordable Lifts (HEAL) Act, support passage","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":37,"name":"Justice, Dept of (DOJ)"},{"id":1,"name":"SENATE"},{"id":40,"name":"Transportation, Dept of (DOT)"}]},{"general_issue_code":"BUD","general_issue_code_display":"Budget/Appropriations","description":"-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2025, support funding for epilepsy programs and research including $11.581 billion for the CDC including $12.5 million for the CDCs Epilepsy program, $164 million for the Safe Motherhood and Infant Health program, $51.3 billion for the NIH, $740 million for the BRAIN Initiative, $15 million to start considering an epilepsy-related research and clinical consortium at the NIH, $10 million for the National Neurological Conditions Surveillance System and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2025, support at least $26.8 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2025, support robust funding for the Food& Drug Administrations BA. -Defense Appropriations Act, 2025, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program,$10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":69712,"prefix":null,"prefix_display":null,"first_name":"LAURA","nickname":null,"middle_name":null,"last_name":"WEIDNER","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"HCR","general_issue_code_display":"Health Issues","description":"-S. 652/H.R. 2630, Safe Step Act, support passage. -S. 1375/H.R. 830, HELP Copays Act, support passage. -S. 1339, PBM Reform Act, support patient-centric reforms including addition of the Safe Step Act and HELP Copays Act. -H.R. 2880, Protecting Patients Against PBM Abuses Act -Support preservation of Medicare Part Ds Six Protected Classes policy -H.R. 9774 /S. 5194, Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge the federal government to collect better data on the disability community -Urge patient priorities like standardized health plans and network adequacy in the 2026 Notice of Benefit and Payment Parameters rule. -Support regulations to limit access to association health plans -Urge finalization of regulations important to patients and consumers with acute and chronic health conditions including the 1557 rule -Ensure any regulation of cannabis protects safe and legal access -Ensure continued access to needed healthcare via telehealth including prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -H.R. 824, the Telehealth Benefit Expansion for Workers Act, oppose passage. -Support H.R. 670, S. 4174, Think Differently Database Act -Support S. 4325, the Lifespan Respite Care Program Reauthorization Act -Support the parity of coverage of mental health treatments -Support legislation and regulations that incentivize the development of rare disease treatments -Support regulations on the use of diversity action plans for clinical trials -Support legislation and regulations that help to advance health equity for people with epilepsy -S. 5065/H.R. 9635, Seizure Awareness and Preparedness Act, support passage -Support legislation and regulations that would ban the use of electric shock devices that apply a shock to a persons skin to reduce or cease self-injurious or aggressive behaviors -Supporting legislation and regulations that protect the current structure of the National Institutes of Health -Support legislation and regulations to keep insurance brokers accountable -Support H.R. 7573, Stop Medicaid Recovery Act -Support legislation and regulations on continuous eligibility in Medicaid -Support H.R. 4758/S.2372, Accelerating Kids Access to Care Act -Support legislation and regulations to streamline prior authorization processes -Support the creation of an Office of Caregiving at the Department of Health and Human Services -Comments on the next phase of 21st Century Cures -Comments on the Hospital Outpatient Prospective Payment System (OPPS) Proposed Rule -Support legislation and regulations to reduce the burden of medical debt -Support legislation and regulation on the responsible use of AI in healthcare","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":69712,"prefix":null,"prefix_display":null,"first_name":"LAURA","nickname":null,"middle_name":null,"last_name":"WEIDNER","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":139463,"prefix":"mr","prefix_display":"MR.","first_name":"TYLER","nickname":null,"middle_name":null,"last_name":"BECK","suffix":null,"suffix_display":null},"covered_position":null,"new":false},{"lobbyist":{"id":144397,"prefix":null,"prefix_display":null,"first_name":"ROXANNE","nickname":null,"middle_name":null,"last_name":"YAGHOUBI","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":136,"name":"Centers For Medicare and Medicaid Services (CMS)"},{"id":34,"name":"Health & Human Services, Dept of (HHS)"},{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":38,"name":"Labor, Dept of (DOL)"},{"id":1,"name":"SENATE"},{"id":41,"name":"Treasury, Dept of"}]}],"conviction_disclosures":[],"foreign_entities":[],"affiliated_organizations":[]}